Information A-Z

The resources will help you to gain a better understanding of cognitive impairment and key elements of high-quality care.

Aboriginal and Torres Strait Islander people

Australian Indigenous HealthInfoNet – Dementia

Australian Indigenous HealthInfoNet – Dementia provides information and resources about dementia among Aboriginal and Torres Strait Islander people.

Guide to better care for Aboriginal and Torres Strait Islander people

The Australian Commission on Safety and Quality in Health Care has produced six guides to assist health service organisations improve care for Aboriginal and Torres Strait Islander people.

Advance care planning

Future planning and advance care planning

The National Health and Medical Research Council’s (NHMRC) Partnership Centre for dealing with cognitive and related functional decline in older people (CDPC)’s advance care planning project developed resources with consumer and industry input to support future planning and advance care planning for people with dementia.

Allied Health

Allies in Dementia Health Care project

Allies in Dementia Health Care Project, a joint initiative of Dementia Australia and the NSW Agency for Clinical Innovation has developed resources that provide an overview of the important role of allied health in supporting people with dementia.

Antipsychotics

Antipsychotics and dementia: Managing medications

Antipsychotics & Dementia: Managing Medications is a video on Dementia Australia’s Detect Early website about the use of antipsychotics and alternative solutions for behavioural and psychological symptoms of dementia.

Assessment

Assessment of older people with confusion

This video from the Confused Hospitalised Older Person’s (CHOPS) Program emphasises the importance of undertaking further assessment to determine the cause when an older person is cognitively impaired.

Behaviour

Caring for cognitive impairment responding to distress

This webinar focuses on what clinicians can to reduce distress that is often experienced by people with cognitive impairment in hospital.

Assessment and Management of People with Behavioural and Psychological Symptoms of Dementia (BPSD) handbook

This 2013 publication by the NSW Ministry of Health and the Royal Australian and New Zealand College of Psychiatrists is a practical resource for health staff who work with people with dementia and those who experience behavioural and psychological symptoms associated with dementia.

Dementia Training Australia 

Dementia Training Australia provides a service and resources to assist staff in aged care and health care facilities to understand the causes of “responsive behaviours” and to find ways to avoid or reduce them. The service can complement services provided by Dementia Support Australia (DSA).

See The View from Here: Skills in Dementia Care for Acute Settings under Online training.

Brain Injury

Brain Injury Australia

Brain Injury Australia (BIA) website provides a clearinghouse of information for people living with brain injury.

This article provides information on traumatic brain injury.

Capacity

Determining patients' capacity

See Determining patients’ capacity, page 15-19 in A better way to care – Actions for health service managers.

Cognition

MAXCOG: Maximising cognition

MAXCOG: Maximising Cognition are resources developed for people with mild cognitive impairment and early dementia that provide techniques and strategies to manage difficulties related to thinking, memory, language and vision.

Older people in hospital toolkit - Cognition

Older people in hospital is a Victorian resource in its third edition that provides clinicians with evidence-based information and simple strategies to minimise the risk of functional decline for older people in hospital. This section relates to cognition.

Cognitive impairment

About cognitive impairment

There are extensive resources about cognitive impairment on the Caring for Cognitive Impairment campaign website.

Commmunication - Brain Injury

Acquired Brain Injury Outreach Service (ABIOS)

Acquired Brain Injury Outreach Service (ABIOS) of Queensland Health provides a webpage that outlines communication and languages changes following an acquired brain injury and useful strategies for communication.

Communication

Communication tools

The following are useful communication tools that can assist in providing person centred care for people with dementia.

The Focus on the person form is designed to help family carers inform hospital staff about a person living with dementia. It was developed by Toye et al from Curtin University and Sir Charles Gairdner Hospital, with funding from the Dementia Collaborative Research Centre: Carers and Consumers.

The Sunflower tool is another example that has been used in Confused Hospitalised Older Person’s (CHOPS) Program. See this clinician experience video.

Alzheimer’s Society (UK)– This is me tool, provides a simple and practical tool that people with dementia can use to tell staff about their needs, preferences, likes, dislikes and interests.

Effective communication to enhance care

This video from the Confused Hospitalised Older Person’s (CHOPS) Program talks about the importance of communication, with patients, carers and families and between and between all members of the multidisciplinary team.

Dementia and delirium - Communication at transitions of care

In this video, clinicians explain the importance of communicating at transitions.

Dementia Australia's communication help sheet

Dementia Australia’s Communication Help Sheet, outlines possible changes in communication as a result of dementia and suggests ways families and carers can help. It also includes some personal tips on communication written by a person with dementia.

Sight, perception and hallucinations in dementia

Sight, perception and hallucinations in dementia is a factsheet from the UK Alzheimer’s Society that outlines the vision and perception difficulties that a person living with dementia can experience and suggests way of providing support. These difficulties are a reminder of the importance of understanding not only cognitive changes but also the perceptual, visual and language difficulties experienced by a person with cognitive impairment and that these will be different for each person and will change over time.

Dementia Australia's brochure

Dementia Australia’s brochure “Talk to me”, provides communication tips for talking to people with dementia.

Dementia Australia's dementia language guidelines

Dementia Australia’s Dementia Language Guidelines, promote use of non-stigmatising language when talking about dementia and people with dementia.

Dementia Australia Cultura

Dementia Australia Cultura is a website and an app that provides a database of resources and cultural information to assist health care workers to learn about specific cultural needs.

Consumer Information

Delirium consumer information

Australasian Delirium Association provides community information on delirium on their website.

Dementia information in other languages

Dementia information in other languages is provided on Dementia Australia’s website.

Healthdirect

Healthdirect, a government-funded service, providing quality, approved health information has information on Dementia and on Dementia and Delirium.

Consumer Companion Guide for the Clinical Practice Guidelines and Principles of Care for People with Dementia

The 2016 NHMRC Partnership Centre for Dealing with Cognitive and Related Functional Decline in Older People has developed a Consumer Companion Guide for the Clinical Practice Guidelines and Principles of Care for People with Dementia that enables people with dementia and their carers to be fully informed about what kind of care and treatment to expect.

Dementia Australia's online dementia support

Through this website consumers can arrange online counselling (email or videoconference), learn about dementia, connect with others and find out where and how to get help.

Dementia Australia's website

Dementia Australia’s website provides a wealth of useful resources.

Allied health professionals and you: A guide for people living with dementia and their carers

The consumer guide from the Allies in Dementia Health Care Project is a joint initiative of Dementia Australia and the NSW Agency for Clinical Innovation.

Delirium

Delirium risk identification

This video from the Confused Hospitalised Older Person’s (CHOPS) Program explains the importance of identifying a person at risk of delirium and what you can do.

Patient delirium experience

A patient describes his experience of post operative delirium in a video that highlights how distressing the experience can be.

See also education videos on delirium under educational videos.

See also Learn about Delirium under online learning.

Delirium – Care of confused hospitalised older person: An education services for health professionals

Videos for delirium that include doctors and delirium, the nursing perspective and carer experiences.

Delirium is everybody’s business - Implementing the CHOPS program

Delirium is everybody’s business – extract from Ms Bacorro’s interview.

Be Alert to Delirium question time

In this webinar Professor Gideon Caplan answers further questions on delirium that weren’t covered in his popular first delirium webinar.

Be Alert to Delirium: Webinar

This webinar explains what delirium is, its risks and how to prevent it.

On my mind: High quality care

Clinicians explain key strategies for providing high quality care for people with cognitive impairment.

On my mind: Delirium

Professor Kurrle explains delirium and a family member outlines what is important from the family’s perspective.

Care of confused hospitalised older person: An education services for health professionals

Videos for delirium that include doctors and delirium, the nursing perspective and carer experiences.

Delirium Clinical Care Standard

Information regarding the Delirium Clinical Care Standard is available on the Clinical Care Standards page.

Further information is available on the Commission’s website including accompanying resources for consumers, clinicians and health services on appropriate care to people at risk of, or with, delirium.

Vanderbilt University Medical Centre ICU delirium

Vanderbilt University Medical Centre ICU Delirium website provides education about delirium in the ICU for health professionals and patients and families.

Learn about delirium

Learn about Delirium – online learning.

On my mind: Delirium 

On My Mind Delirium – education video.

idelirium

idelirium is the website for the federation of American, Australian and European delirium societies.

Australasian Delirium Association

Australasian Delirium Association aims to promote better understanding of delirium through leadership, education, support, resources, research and partnerships.

Delirium prevention

(US) Health Research & Educational Trust (HRET)

Preventing Iatrogenic Delirium Change Package: 2016 is a change package developed for hospitals by the HRET Hospital Improvement Innovation Network that provides a range of strategies and specific actions to prevent delirium.

Hospital Elder Life Program (HELP) – Dr. Sharon K. Inouye

Hospital Elder Life Program (HELP) – Dr. Sharon K. Inouye and her colleagues at the Yale University School of Medicine originally designed HELP to prevent delirium and it has developed into a comprehensive program to optimise the care of older people in the hospital.

Dementia

Dementia Care in Hospitals Program (DCHP)

The Dementia Care in Hospitals Program (DCHP) is a model of care linked to the use of a Cognitive Impairment Identifier (CII).

The CII is a bedside identifier used by Ballarat Health Services and other health services in Victoria to alert staff to memory and thinking difficulties such as dementia, delirium, and cognitive impairment.

Organisations who have adopted this model of care in partnership with BHS have undergone extensive hospital wide education on the CII use and philosophy of care attached to the symbol.

Barbara's story

This video is a dementia awareness training resource developed by Guy’s and St Thomas’ NHS Foundation Trust (GSST) in UK that focusses on a person living with dementia and her experience in an acute sector care setting.

Dementia and delirium - the facts

Professor Kurrle explains the difference between delirium and dementia.

On my mind: Dementia and delirium

Clinicians explain the difference between delirium and dementia and the importance of involving family members.

Dementia and delirium – Providing a safe and supportive environment in hospital

Clinicians provide useful suggestions for creating a calm, safe supportive environment for people with cognitive impairment in hospital.

At home with dementia

At Home with Dementia provides practical, general suggestions for addressing problems commonly faced by people living with dementia in the home environment, noting that solutions will be different for each individual and will depend on the particular difficulties they are experiencing that will change over time.

The Dementia Enabling Environment Project (DEEP) virtual information centre

The Dementia Enabling Environment Project (DEEP) Virtual Information Centre provides practical tips, guides and resources to modify homes, care environments, gardens and public buildings to help a person with dementia to lead as full and independent a life as possible.

Principles for improving healthcare for people with dementia

Key Principles for Improving Healthcare Environments for People with Dementia provides design guidance for new and refurbished inpatient units and is an update of the Adapting the Ward for People with Dementia booklet first published by NSW Health in 2003.

Elder abuse

The My Aged Care website provides state and territory contact details for information and support for elder abuse concerns.

Dementia Australia

Dementia Australia website.

NHMRC Partnership Centre for dealing with cognitive and related functional decline in older people

The 2016 NHMRC Partnership Centre for Dealing with Cognitive and Related Functional Decline in Older People has developed Clinical Practice Guidelines and Principles of Care for People with Dementia.

Dementia Training Australia 

Dementia Training Australia provides a service and resources to assist staff in aged care and health care facilities to understand the causes of “responsive behaviours” and to find ways to avoid or reduce them. The service can complement services provided by Dementia Support Australia (DSA).

See The View from Here: Skills in Dementia Care for Acute Settings under Online training.

Environment

Supportive care environment

This video from the Confused Hospitalised Older Person’s (CHOPS) Program provides ideas for creating supportive care environments for people with cognitive environment.

Dementia Training Australia

Dementia Training Australia provides environmental design resources and an environmental design education service to all states and territories.

Dementia and delirium – Providing a safe and supportive environment in hospital

Clinicians provide useful suggestions for creating a calm, safe supportive environment for people with cognitive impairment in hospital.

Guidelines

Clinical practice guidelines and principles of care for people with dementia

The 2016 NHMRC Partnership Centre for Dealing with Cognitive and Related Functional Decline in Older People Clinical Practice Guidelines and Principles of Care for People with Dementia, provides recommendations for the assessment and management of behavioural and psychological symptoms of dementia.

Individuals working in hospitals

What it has meant for me as a clinician - Implementing the CHOPS program

What it has meant for me as a clinician – extract from Ms Strahand’s interview.

Intellectual disability

NOFASD Australia

NOFASD Australia is the website for the national peak organisation representing the interests of individuals and families living with Fetal Alcohol Spectrum Disorders (FASD) and provides a range of information resources.

Living with Intellectual disability and dementia

Living with Intellectual Disability and Dementia video produced Alzheimer’s Australia NSW, provides a resource for services working in the disability sector and for family members and friends who are concerned about signs of cognitive decline in a relative or friend who lives with an intellectual disability.

Monash Health Centre for developmental disability health

Monash Health Centre for Developmental Disability Health website provides resources for working with people with an intellectual disability in health.

Working with people with an intellectual disability fact sheet

Working with people with an intellectual disability fact sheet, from Centre for Developmental Disability Health Victoria, provides strategies for good health care and for communicating with people with an intellectual disability.

The Admission2Discharge (A2D) Together project

The Admission2Discharge (A2D) Together Project aims to improve the hospital experience for people with intellectual disability through improved communication.

It features an admission to discharge folder (A2D), created by a NSW partnership between Family and Community Services (Disability) at South East Sydney District, South Eastern Sydney Local Health District, Carer Program, and Metro-Regional Intellectual Disability Network (MRID). The folder facilitates timely transfer of relevant and current information to enable hospital staff to meet the needs of people with intellectual disability in hospital.

Medicines

NPS Medicinewise and Alzheimer’s Australia

NPS Medicinewise and Alzheimer’s Australia provide information on Medicines & Dementia, including strategies for minimising distress.

Partnering with consumers

Using reminiscence with people with dementia in acute and sub-acute care

An Australian Government funded manual developed through a collaboration between the University of Melbourne and Melbourne Health in Victoria that provides practical information that medical, nursing, allied health staff and volunteers can use to adopt and implement reminiscence within everyday care of people with dementia who are hospitalised.

Developing a resource to engage patients - Implementing the CHOPS program

We are developing a resource to engage patients – extract from Ms Summers interview.

Managing delirium better - Implementing the CHOPS program

We can manage delirium better – extract from Ms Coyle’s interview.

Involving carers – TOP 5 - Implementing the CHOPS program

We involved carers through TOP 5 – Extract from Ms Bacorro’s interview.

Dementia and delirium in ED – A medical perspective

Dr Ryan shares strategies for providing high quality care for people with cognitive impairment in the emergency department.

Patient and consumer centred care

The webpage on the Commission’s website provides information on partnering with consumers, which is about healthcare organisations, healthcare providers and policy-makers actively working with people who use the healthcare system to ensure that health information and services meet people’s needs.

Pathway

A better way to care

The Commission has developed three resources for managers, clinicians and consumers to help improve care of people with cognitive impairment.

Screening

Undertake cognitive screening

This video from the Confused Hospitalised Older Person’s (CHOPS) Program explains the importance of finding out about a person’s cognition and doing that through cognitive screening to establish a baseline.

Cognitive impairment – The importance of screening

A video showing importance of screening for cognitive impairment.

A better way to care - Actions for health service managers

See page 38 – 41 of A better way to care – Actions for health service managers.

Settings - ED

Recognising delirium in ED – A nurse's perspective

Ms Nelson provides a nursing perspective on recognising delirium in the emergency department.

Dementia and delirium in ED – A medical perspective

Dr Ryan shares strategies for providing high quality care for people with cognitive impairment in the emergency department.

Settings - ICU

Delirium – In intensive care

“Delirium – In Intensive Care” provides delirium from an intensive care perspective.

Settings – General practice

Dementia and delirium – The general practitioner's perspective

Professor May provides a general practitioner perspective on caring for patients with cognitive impairment.

Top 5

Clinical Excellence Commission Top 5 program

The Clinical Excellence Commission TOP 5 program supports clinician engagement with carers, to support individualised care for the person with cognitive impairment.

Volunteers

Volunteer dementia and delirium care implementation and training resource

Volunteer Dementia and Delirium Care Implementation and Training Resource, developed by the NSW Agency for Clinical Innovation (ACI) provides a comprehensive suite of materials required to establish and implement an evidence-based dementia and delirium care hospital volunteer program.